There are two types of people in the world. The kind that care and try to understand the situation and those that don't. One isn't necessarily better than the other- that's just how it is. Some people are predictable. They are who they are and you know to expect that from them. There are however the instances where words fly out from left field and slap you in the face. The hardest part is when it's coming from someone who should love you unconditionally and support you no matter what.
I've had my fair share of individuals close to me not understand and fail to take the time to try. I believe a major part of understanding the life of a bleeder is asking questions. I find it difficult to want to explain my day to day life to people who don't seem to care. In my eyes, it's a waste of time. It's hard to affectively educate as an unaffected person tells you how you're supposed to live your life. Let's all keep in mind what they say about assuming. I guess the best way to explain it is like this... it's different to explain things to a stranger and them not understand than to explain it to someone close to you and them completely ignore it.
I guess a lot of it falls back on me though. The miscommunication and misunderstandings should push me to want to advocate that much more. In all honesty, I just don't think I'm there yet. I've blown off a lot of people that I was once close to because of this. I'm tired of surrounding myself with the negativity of people who refuse to ask questions and acknowledge what I tell them. Maybe I'm wrong in this, but right now I just don't have the patience. I'm ready to surround myself with people who support me and are there for me when I need it the most.
When you live life with a chronic disorder the support and kind words of others goes further in getting you through the day than many people realize. I've been blessed to meet people in the community who can sympathize and understand on a different level. Their support and empathy mean everything. As disappointing as it is to not have the encouragement and support from some key individuals I used to feel close to, my hemo family makes up for it. It truly is the kindness and love from these people who keep me going on my worst days, and without them, I don't know where I'd be.
I've had my fair share of individuals close to me not understand and fail to take the time to try. I believe a major part of understanding the life of a bleeder is asking questions. I find it difficult to want to explain my day to day life to people who don't seem to care. In my eyes, it's a waste of time. It's hard to affectively educate as an unaffected person tells you how you're supposed to live your life. Let's all keep in mind what they say about assuming. I guess the best way to explain it is like this... it's different to explain things to a stranger and them not understand than to explain it to someone close to you and them completely ignore it.
I guess a lot of it falls back on me though. The miscommunication and misunderstandings should push me to want to advocate that much more. In all honesty, I just don't think I'm there yet. I've blown off a lot of people that I was once close to because of this. I'm tired of surrounding myself with the negativity of people who refuse to ask questions and acknowledge what I tell them. Maybe I'm wrong in this, but right now I just don't have the patience. I'm ready to surround myself with people who support me and are there for me when I need it the most.
When you live life with a chronic disorder the support and kind words of others goes further in getting you through the day than many people realize. I've been blessed to meet people in the community who can sympathize and understand on a different level. Their support and empathy mean everything. As disappointing as it is to not have the encouragement and support from some key individuals I used to feel close to, my hemo family makes up for it. It truly is the kindness and love from these people who keep me going on my worst days, and without them, I don't know where I'd be.
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